Carrying Out Research Among Persons with Disabilities and their Relatives – Selected Ethical Issues
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RIS BIB ENDNOTECarrying Out Research Among Persons with Disabilities and their Relatives – Selected Ethical Issues
Publication date: 20.12.2018
Zoon Politikon, 2018, Special Issue 2018, pp. 200 - 217
https://doi.org/10.4467/2543408XZOP.18.010.10066Authors
Carrying Out Research Among Persons with Disabilities and their Relatives – Selected Ethical Issues
The paper tackles issues related to selected both ethical and practical aspects of conducting research among persons with disabilities and their relatives that constitute a vulnerable social group. The author analyzes its consequences in the research process, discusses the significance of the research problem undertaken both for the development of academic knowledge and for research participants, and analyzes the conditions for obtaining informed consent. Limits of sociological interview and researcher’s engagement are also discussed.
This article is a translated and modified version of the text that was published in the previous issue of “Zoon Politikon”. See: Marta Sałkowska, Wybrane etyczne aspekty realizacji badań wśród osób z niepełnosprawnościami i ich bliskich, "Zoon Politikon" (8) 2017, DOI: 10.4467/2543408XZOP.17.003.9267.
Becker H.S. (1967), Whose side are we on?, „Social Problems” Vol. 14
Ciuk S., Latusek-Jurczak D. (2012), Etyka w badaniach jakościowych [Ethics in qualitative research], (in:) Badania jakościowe. Podejścia i teorie. Tom I [Qualitative Research. Approaches and Theories. Volume I], (Ed.) Jemielniak D., Wydawnictwo Naukowe PWN, Warszawa
Chase S.E. (2005), Narrative Inquiry: Toward Theoretical and Methodological Maturity., (in:) The Sage Handbook of Qualitative Research. 3rd Edition, (Eds.) Denzin N.K., Lincoln Y.S., Sage Publications, Thousand Oaks–London–New Delhi
Creswell J.W. (2009), Qualitative Inquiry & Research Design. Choosing Among Five Approaches, Sage Publications, Thousand Oaks
Flick U. (2007), Designinh Qualitative Research, Sage Publications, Thousand Oaks–London–New Delhi–Los Angeles–Singapore–Washington
Liamputtong P. (2007), Researching the Vulnerable. A Guide to Sensitive Re-search Methods, Sage Publications, London–Thousand Oaks–New Delhi
Lofland J., Snow D.A., Anderson L., Lofland L.H. (2006), Analyzing Social Settings: A Guide to Qualitative Observation and Analysis, Wadsworth Thomson, Belmond CA.
Niedbalski J. (2009), Niepełnosprawność intelektualna w perspektywie ba-dań socjologicznych. Rozważania nad zastosowaniem metod jakościowych [Intellectual disability in the perspective of sociological research. Considerations on qualitative methods’ application], (in:) Metody, techniki i praktyka badań społecznych [Methods, techniques and practice of social research], (Eds.) Bąk A., Kubisz-Muła Ł., Wydawnictwo Akademii Techniczno-Humanistycznej, Bielsko-Biała
Sałkowska M. (2015), Matka Downa. Piętno. Znaczenia. Strategie [Down’s Mother. Stigma. Meanings. Strategies], Zakład Wydawniczy NOMOS, Kraków
Surmiak A. (2016), Wybrane problemy etyczne w naukowych badaniach na zlecenie. Refleksje etnografki [Some Ethical Issues in Contract Research. Ethnographer’s Reflections], „Przegląd Socjologii Jakościowej”, t. 12, nr 3, http://www.qualitativesociologyreview.org/PL/Volume35/PSJ_12_3_Surmiak.pdf
Thoits P.A. (2011), Resisiting the Stigma of Mental Illness, “Social Psychology Quarterly” Vol. 74, No. 6
Information: Zoon Politikon, 2018, Special Issue 2018, pp. 200 - 217
Article type: Original article
Collegium Civitas
Published at: 20.12.2018
Article status: Open
Licence: CC BY-SA
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