Piśmiennictwo

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5. Hendrix C.C., Landerman R., Abernethy A.P., Effects of an individualized caregiver training intervention on self-efficacy of cancer caregivers, „Western Journal of Nursing Research”, 2013; 35(5): 590–610.

6. Ormandy P., Defining information need in health – assimilating complex theories derived from information science, „Health Expectations”, 2010; 14: 92–104.

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8. Kersten P., McLellan L., George S., Mullee M.A., Smith J.A., Needs of carers of severely disabled people: are they identified and met adequately?, „Health and Social Care in the Community”, 2001; 9(4): 235–243.

9. Hafsteinsdottir T.B., Vergunst M., Lindeman E., Schuurmans M., Educational needs of patients with a stroke and their caregivers: a systematic review of the literature, „Patient Education and Counsueling”, 2011; 85(1): 14–25.

10. Abley C., Manthorpe J., Bond J., Keady J., Samsi K., Campbell S. et al., Patientsʼ and carersʼ views on communication and information provision when undergoing assessments in memory services, „Journal of Health Services Research and Policy”, 2013; 18(3): 167–173.

11. Ahmed R., Borst J.M., Yong C.W., Aslani P., Do parents of children with attention-deficit/hyperactivity disorder (ADHD) receive adequate information about the disorder and its treatments? A qualitative investigation, „Patient Prefer Adherence”, 2014; 8: 661–670.

12. Bajwah S., Koffman J., Higginson I.J., Ross J.R., Wells A.U., Birring S.S. et al., ‘I wish I knew more... ʼthe end-of-life planning and information needs for end-stage fibrotic interstitial lung disease: views of patients, carers and health professionals, „BMJ Support Palliative Care”, 2013; 3(1): 84–90.

13. Boughtwood D., Shanley C., Adams J., Santalucia Y., Kyriazopoulos H., Pond D. et al., Dementia information for culturally and linguistically diverse communities: sources, access and considerations for effective practice, „Australian Journal of Primary Healthˮ, 2012; 18(3): 190–196.

14. Bray L., Callery P., Kirk S., A qualitative study of the pre-operative preparation of children, young people and their parents’ for planned continence surgery: experiences and expectations, „Journal of Clinical Nursingˮ, 2012; 21(13): 1964–1973.

15. Chien W.T., Lee I.Y., An exploratory study of parents’ perceived educational needs for parenting a child with learning disabilities, „Asian Nursing Research (Korean Soc. Nurs. Sci.)ˮ, 2013; 7(1): 16–25.

16. Chovil N., Panagiotopoulos C., Engaging families in research to determine health literacy needs related to the use of second-generation antipsychotics in children and adolescents, „Journal of the Canadian Academy of Child Adolescent Psychiatryˮ, 2010; 19(3): 201–208.

17. Elf M., Skarsater I., Krevers B., ‘The web is not enough, itʼs a baseʼ – an explorative study of what needs a web-based support system for young carers must meet, „Informatics for Health and Social Careˮ, 2011; 36(4): 206–219.

18. Harrop E., Byrne A., Nelson A., “It’s alright to ask for helpˮ: findings from a qualitative study exploring the information and support needs of family carers at the end of life, „BMC Palliative Careˮ, 2014; 13: 22.

19. Hebert R.S., Schulz R., Copeland V.C., Arnold R.M., Preparing family caregivers for death and bereavement. Insights from caregivers of terminally ill patients, „Journal of Pain and Symptom Manageˮ, 2009; 37(1): 3–12.

20. Ingram J., Cabral C., Hay A.D., Lucas P.J., Horwood J., TARGET team. Parentsʼ information needs, self-efficacy and influences on consulting for childhood respiratory tract infections: a qualitative study, „BMC Family Practiceˮ, 2013, http://www.biomedcentral.com/1471-2296/14/106; dostęp: 1.05.2015.

21. Jones C.H., Neill S., Lakhanpaul M., Roland D., Singlehurst-Mooney H., Thompson M., Information needs of parents for acute childhood illness: determining ‘what, how, where and whenʼ of safety netting using a qualitative exploration with parents and clinicians, „BMJ Openˮ, 2014; 4(1), http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3902331/pdf/bmjopen-2013-003874.pdf; dostęp: 1.05.2015.

22. Kastel A., Enskar K., Bjork O., Parentsʼ views on information in childhood cancer care, „European Journal of Oncology Nursingˮ, 2011; 15(4): 290–295.

23. Kilicarslan-Toruner E., Akgun-Citak E., Information-seeking behaviours and decision-making process of parents of children with cancer, „European Journal of Oncology Nursingˮ, 2013; 17(2): 176–183.

24. Kirk S., Fallon D., Fraser C., Robinson G., Vassallo G., Supporting parents following childhood traumatic brain injury: a qualitative study to examine information and emotional support needs across key care transitions, „Child Care Health Developmentˮ, 2014; 42 (2): 303–313.

25. Klein S., Wynn K., Ray L., Demeriez L., LaBerge P., Pei J. et al., Information sharing during diagnostic assessments: what is relevant for parents?, „Physical Occupational Therapy in Pediatricsˮ, 2011; 31(2): 120–132.

26. Lipstein E.A., Lovell D.J., Denson L.A., Moser D.W., Saeed S.A., Dodds C.M. et al., Parentsʼ information needs in tumor necrosis factor-alpha inhibitor treatment decisions, „Journal of Pediatric Gastroenterology and Nutritionˮ, 2013; 56(3): 244–250.

27. Macinnes D., Beer D., Reynolds K., Kinane C., Carers of forensic mental health in patients: what factors influence their satisfaction with services?, „Journal of Mental Healthˮ, 2013; 22: 528–535.

28. Mak L., Hiebert-Murphy D., Walker J.R., Altman G., Parents’ Decision Making and Their Information Needs Concerning Treatments for Child Anxiety: Implications for Family-Centered Practice, „Journal of Family Social Workˮ, 2014; 17(1): 51–67.

29. Marton C., Using the web to meet the information needs of adult cancer patients and their caregivers, „Journal of Hospital Librarianship”, 2009; 9(1): 15–22.

30. Mastel-Smith B., Stanley-Hermanns M., “It’s Like We’re Grasping at Anything”: Caregivers’ Education Needs and Preferred Learning Methods, „Qualitative Health Research”, 2012; 22(7): 1007–1015.

31. Mazor K.M., Beard R.L., Alexander G.L., Arora N.K., Firneno C., Gaglio B. et al., Patients’ and family members’ views on patient-centered communication during cancer care, „Psychooncology”, 2013; 22(11): 2487–2495.

32. Muggli E.E., Collins V.R., Marraffa C., Going down a different road: First support and information needs of families with a baby with down syndrome, „The Medical Journal of Australia”, 2009; 190(2): 58–61.

33. Mulligan J., Steel L., Macculloch R., Nicholas D., Evaluation of an information resource for parents of children with autism spectrum disorder, „Autism”, 2010; 14(2): 113–126.

34. Nordfeldt S., Angarne-Lindberg T., Nordwall M., Krevers B., Parents of adolescents with type 1 diabetes–their views on information and communication needs and internet use. A qualitative study, „PLoS One”, 2013; 8(4): e62096.

35. O’Reilly M., Karim K., Lester J.N., Separating ‚emotion’ from ‚the science’: Exploring the perceived value of information for parents and families of children with autistic spectrum disorder, „Clinical Child Psychology and Psychiatry”, 2015; 20(3): 500–514.

36. Paulsen-Miller M., Dolan L.A., Stineman A., Morcuende J.A., Understanding the educational needs for parents of children with clubfoot, „Orthopedic Nursing”, 2011; 30(4): 273–278.

37. Ringner A., Jansson L., Graneheim U.H., Parental experiences of information within pediatric oncology, „Journal of Pediatric Oncology Nursing”, 2011; 28(4): 244–251.

38. Robben S., van Kempen J., Heinen M., Zuidema S., Olde Rikkert M., Schers H. et al., Preferences for receiving information among frail older adults and their informal caregivers: A qualitative study, „Family Practice”, 2012; 29(6): 742–747.

39. Schook R.M., Linssen C., Schramel F.M.N.H, Festen J., Lammers E., Smit E.F. et al., Why Do Patients and Caregivers Seek Answers From the Internet and Online Lung Specialists? A Qualitative Study, „Journal of Medical Internet Research”, 2014; 16(2): 1–1.

40. Selman L., Higginson I.J., Agupio G., Dinat N., Downing J., Gwyther L. et al., Meeting information needs of patients with incurable progressive disease and their families in South Africa and Uganda: Multicentre qualitative study, „BMJ (Online)”, 2009; 338(7703): 1127–1131.

41. Stinson J.N., Feldman B.M., Duffy C.M., Huber A.M., Tucker L.B., McGrath P.J. et al., Jointly managing arthritis: information needs of children with juvenile idiopathic arthritis (JIA) and their parents, „Journal of Child Health Care”, 2012; 16(2): 124–140.

42. Swanson P.C.W., Information needs and challenges faced by adult child financial caregivers of aging parents, „Journal of Extension”, 2013; 51(2): 2FEA2, http://www.joe.org/joe/2013april/a2.php; dostęp: 1.05.2015.

43. Wallengren C., Segesten K., Friberg F., Relatives’ information needs and the characteristics of their search for information–in the words of relatives of stroke survivors, „Journal of Clinical Nursing”, 2010; (19–20): 2888–2896.

44. Arabiat D.H., Altamimi A., Unmet care needs of parents of children with cancer in Jordan: implications for bed-side practice, „Journal of Clinical Nursing”, 2013; 22(3): 531–539.

45. Eames S., Hoffmann T., Worrall L., Read S., Delivery styles and formats for different stroke information topics: patient and carer preferences, „Patient Education and Counseling”, 2011; 84(2): e18–e23.

46. Gayatri N.A,. Morrall M.C.H.J., Jain V., Kashyape P., Pysden K., Ferrie C., Parental and physician beliefs regarding the provision and content of written sudden unexpected death in epilepsy (SUDEP) information, „Epilepsia”, 2010; 51(5): 777–782.

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49. Healy K., A descriptive survey of the information needs of parents of children admitted for same day surgery, „Journal of Pediatric Nursing”, 2013; 28(2): 179–185.

50. Hinojosa M.S., Hinojosa R., Rittman M., Predictors of Health Information Needs among U.S. Mainland and Puerto Rican Caregivers, „Sociological Spectrum”, 2012; 32(3): 195–208.

51. Hinojosa M.S., Rittman M., Association between health education needs and stroke caregiver injury, „Journal of Aging Health”, 2009; 21(7): 1040–1058.

52. Hirakawa Y., Kuzuya M., Enoki H., Uemura K., Information needs and sources of family caregivers of home elderly patients, „Archives of Gerontology and Geriatrics”, 2011; 52(2): 202–205.

53. Karczewska B., Bień B., Jamiołkowski J., Melchiorre M.G., Chiatti C., Lamura G., Support gap in dementia family caregivers from Italy and Poland, „Zdrowie Publiczne”, 2012; 122(2): 160–164.

54. Kav S., Tokdemir G., Tasdemir R., Yalili A., Dinc D., Patients with cancer and their relatives beliefs, information needs and information-seeking behavior about cancer and treatment, „Asian Pacific Journal of Cancer Prevention”, 2012; 13(12): 6027–6032.

55. Koenig K.N., Steiner V., Pierce L.L., Information needs of family caregivers of persons with cognitive versus physical deficits, „Gerontology & Geriatrics Education”, 2011; 32(4): 396–413.

56. Longacre M.L., Cancer caregivers information needs and resource preferences, „Journal of Cancer Education”, 2013; 28(2): 297–305.

57. Lwoga E.T., Mosha N.F., Information seeking behaviour of parents and caregivers of children with mental illness in Tanzania, „Library Review”, 2013; 62(8): 567–584.

58. Manders E., Marien A., Janssen V. Informing and supporting partners and children of persons with aphasia: a comparison of supply and demand, „Logopedics, Phoniatrics, Vocology”, 2011; 36(4): 139–144.

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60. Noor Siah A.A., Ho S.E., Jafaar M.Z., Choy Y.C., Das S., Ismail S.M. et al., Information needs of family members of critically ill patients in intensive care unit of a tertiary hospital, „Clinical Therapeutics”, 2012; 163(1): 63–67.

61. Sciberras E., Iyer S., Efron D., Green J., Information needs of parents of children with attention-deficit/hyperactivity disorder, „Clinical Pediatrics (Phila)”, 2010; 49(2): 150–157.

62. Sheets K.B., Best R.G., Brasington C.K., Will M.C., Balanced information about Down syndrome: what is essential?, „American Journal of Medical Genetics”, 2011; 155A(6): 1246–1257.

63. Thon A., Ullrich G., Disease impact and disease-unrelated strain in parents of children with rheumatic disease: is there an influence on disease-related information needs?, „Disability and Rehabilitation”, 2010; 32(2): 134–141.

64. Thon A., Ullrich G. Information needs in parents of children with a rheumatic disease, „Child: Care, Health and Development”, 2009; 35(1): 41–47.

65. Trask C.L., Greene Welch J.J., Manley P., Jelalian E., Schwartz C.L. Parental needs for information related to neurocognitive late effects from pediatric cancer and its treatment, „Pediatric Blood and Cancer”, 2009; 52(2): 273–279.

66. Wahl H., Banerjee J., Manikam L., Parylo C., Lakhanpaul M., Health information needs of families attending the paediatric emergency department, „Archives of Disease in Childhood”, 2011; 96(4): 335–339.

67. Wei S.J., Cooke M., Moyle W., Creedy D., Health education needs of family caregivers supporting an adolescent relative with schizophrenia or a mood disorder in Taiwan, „Archives of Psychiatric Nursing”, 2010; 24(6): 418–428.

68. Xu Y., Nguyen D., Davidson J., Panagiotopoulos C., Health Information Preference among Youth and Caregivers related to Second-Generation Antipsychotic Treatment, „Journal of the Canadian Academy of Child and Adolescent Psychiatry”, 2012; 21(4): 302–309.

69. Boardman H.F., Gray N.J., Symonds B.S., Interactions between parents/carers of pre-school children and pharmacy staff when buying non-prescription medicines, „International Journal of Clinical Pharmacy”, 2011; 33(5): 832–841.

70. Gansler T., Kepner J., Willacy E., Soloe C., Rupert D., Jarblum M. et al., Evolving information priorities of hematologic cancer survivors, caregivers, and other relatives, „Journal of Cancer Education”, 2010; 25(3): 302–311.

71. Wakefield C.E, Butow P., Fleming C.A., Daniel G., Cohn R.J., Family information needs at childhood cancer treatment completion, „Pediatric Blood & Cancer”, 2012; 58(4): 621–626.

72. Adams E., Boulton M., Watson E., The information needs of partners and family members of cancer patients: a systematic literature review, „Patient Education and Counseling”, 2009; 77(2): 179–186.

73. Archibald M.M., Scott S.D., The information needs of North American parents of children with asthma: a state-of-the-science review of the literature, „Journal of Pediatric Health Care”, 2014; 28(1): 5–13.e2.

74. Bee P.E., Barnes P., Luker K.A., A systematic review of informal caregivers’ needs in providing home-based end-of-life care to people with cancer, „Journal of Clinical Nursing”, 2009; 18(10): 1379–1393.

75. Caress A.L., Luker K.A., Chalmers K.I., Salmon M.P., A review of the information and support needs of family carers of patients with chronic obstructive pulmonary disease, „Journal of Clinical Nursing”, 2009; 18(4): 479–491.

76. De Rouck S., Leys M., Information needs of parents of children admitted to a neonatal intensive care unit: a review of the literature (1990–2008), „Patient Education and Counseling”, 2009; 76(2): 159–173.

77. Dikkers MF, Dunning T, Savage S., Information needs of family carers of people with diabetes at the end of life: a literature review, „Journal of Palliative Medicine”, 2013; 16(12): 1617–1623.

78. Lewis S.A., Noyes J., Mackereth S., Knowledge and information needs of young people with epilepsy and their parents: Mixed-method systematic review, „BMC Pediatrics” 2010; 10: 103, http://www.biomedcentral.com/content/pdf/1471-2431-10-103.pdf; dostęp: 1.05.2015.

79. McCarthy B., Family members of patients with cancer: what they know, how they know and what they want to know, „European Journal of Oncology Nursing”, 2011; 15(5): 428–441.

80. Prorok J.C., Horgan S., Seitz D.P., Health care experiences of people with dementia and their caregivers: A meta-ethnographic analysis of qualitative studies, „CMAJ”, 2013; 185(14): E669–E680.

81. Stevenson M., Achille M., Lugasi T., Pediatric Palliative Care in Canada and the United States: A Qualitative Metasummary of the Needs of Patients and Families, „Journal of Palliative Medicine”, 2013; 16(5): 566–577.

82. Washington K.T., Meadows S.E., Elliott S.G, Koopman R.J., Information needs of informal caregivers of older adults with chronic health conditions, „Patient Education and Counseling”, 2011; 83(1): 37–44.

83. Carey M.L., Clinton-McHarg T., Sanson-Fisher R.W., Shakeshaft A., Development of cancer needs questionnaire for parents and carers of adolescents and young adults with cancer, „Support Care Cancer”, 2012; 20(5): 991–1010.

84. Dall’Armi L., Simpson G.K., Forstner D., Simpson T., Roydhouse J.K., White K.J., The information needs of patients with head and neck cancer and their caregivers: a short report of instrument development and testing, „Applied Nursing Research”, 2013; 26(1): 40–44.

85. Spyropoulos V., Ampleman S., Miousse C., Purden M. Cardiac surgery discharge questionnaires: meeting information needs of patients and families, „Canadian Journal of Cardiovascular Nursing”, 2011; 21(1): 13–19.

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92. Fourie I., Information needs and information behaviour of patients and their family members in a cancer palliative care setting: an exploratory study of an existential context from different perspectives, „Information Research”, 2008; 13(4), http://www.informationr.net/ir/13-4/paper360.html; dostęp: 1.05.2015.