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Badanie jakości 52 stron internetowych o tematyce medycznej, stworzonych za pomocą technologii wiki

Ewa Dobrogowska-Schlebusch

Public Health and Governance, Volume 7, Issue 1, 2009, pp. 102-109

The emergence of Web 2.0 philosophy of using Internet as a platform generated by all Internet users could have many implications for the future of healthcare. While application of the Web 2.0 tools, such as wikis, blogs, podcast and social networks to medicine and healthcare has definitely many benefits (e.g. to develop communication in healthcare and education), there is a growing concern about the quality of the sources of information built using these tools. According to general philosophy of the web 2.0 every Internet user could be the author of Internet’s content. Such a practice could be especially dangerous in case of sources of health related information, where the reliability and accuracy are especially crucial, because there is to much risk to harm the patient if inaccurate and misleading information was posted. The aim of the following study was to assess the quality of the sources of information, built with wiki technology (which is one of the web 2.0 applications).

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The negative consequences of closed access to scientific data and other barriers to information access – an analysis of the health decisions of parents having children with Autism Spectrum Disorder (ASD)

Ewa Dobrogowska-Schlebusch

Public Health and Governance, Volume 14, Issue 2, 2016, pp. 131-140

https://doi.org/10.4467/20842627OZ.16.016.5578

A diagnosis of autism can present a great challenge to the family with autistic children, especially to parents. Health information-seeking behaviour is described as one of many problem-solving and stress-coping strategies in literature. The information was found to have many important functions, e.g. it can contribute to the process of acceptance, it enables parents to access health care services, then to manage their child’s difficult behaviour and it might help parents to respond more effectively to the range of life-changing events that may induce stress.

There are many barriers to meeting the information needs of parents having autistic children. Two different types of barriers to information access can be identified: “objective barriers” (problems communicating with health care professionals, healthcare professionals lack of skills and knowledge of managing children with autism, economic barriers to the access of information, information overload and a low level of health literacy) and “subjective barriers” (experience of social isolation and the parents’ emotional state during diagnosis, which have the potential to make the families prone to misinformation).The main aim of this paper is to describe the negative consequences of barriers to the access of scientific research and evidence-based healthcare information (e.g.: spreading anti-vaccine messages). The problem will be discussed using the example of the information-seeking and health-related behaviour of parents with autistic children.

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Ewa Dobrogowska-Schlebusch

Institute of Public Health, Jagiellonian University Medical College, Kraków, Poland

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Institute of Public Health, Jagiellonian University Medical College, Kraków, Poland

Ewa Dobrogowska-Schlebusch Email

Institute of Public Health, Jagiellonian University Medical College, Kraków, Poland

Biography

Ewa Dobrogowska-Schlebusch