FAQ

Ocena wykorzystania technologii informacyjnych wśród rodziców dzieci ze schorzeniami przewlekłymi

Publication date: 2014

Public Health and Governance, 2013, Volume 11, Issue 4, pp. 318 - 325

https://doi.org/10.4467/20842627OZ.14.031.2170

Authors

,
Mariusz Duplaga
Institute of Public Health, Faculty of Health Sciences, Jagiellonian University, Medical College, Kraków
https://orcid.org/0000-0001-6963-8414 Orcid
All publications →
,
Kinga Kowalska-Duplaga
University Children’s Hospital of Cracow, Jagiellonian University Medical College, ul. Wielicka 265, 30-663 Kraków, Poland
All publications →
Krzysztof Fyderek
University Children’s Hospital of Cracow, Jagiellonian University Medical College, ul. Wielicka 265, 30-663 Kraków, Poland
All publications →

Titles

Ocena wykorzystania technologii informacyjnych wśród rodziców dzieci ze schorzeniami przewlekłymi

Abstract

Assessment of the use of information technologies among parents of children afflicted with chronic diseases

Introduction and aim of the study:The support to patients with chronic conditions is an important aspect of development of e‑health systems. And yet, information about acceptance and skills related to the use of information technologies (IT) among potential end-users is scarce. The objective of this study was assessment of the use of computer and the Internet both for general and health-related activities in the group of parents of children suffering from chronic medical conditions.

Material and methods: The survey was prepared and performed in the group of 120 parents accompanying their children during outpatient visits to speciality polyclinic (response rate 90.8%).

Results: The mean age of respondents was 40.9 years; 82.6% of them were women. The use of computers was declared by 88.1% and the Internet by 80.7% of the respondents. The Internet was one of main sources of health-related information for 77.1% of them. Checking of procedures recommended by a physician and obtaining advice from other parents were indicated most frequently among health-related activities performed online (56,8% and 53,5% respectively). Use of the Internet depended on age, education and place of residence of respondents. These factors did not have impact on accepting of the Internet as one of the main sources of health-related information

Conclusions: The parents of children suffering from chronic conditions more frequently use IT for general and health-related purposes than general population. Although they reveal relatively high satisfaction, there are still areas of care which could benefit from introduction of e‑health tools. However, there are still areas which could be supported or enhanced with e‑health solutions.

References

Turowiec A., Giest S., Dumortier J., Artmann J., eHealth Strategies. Country Brief: Poland. October 2010, http://ehealth-strategies.eu/database/documents/Poland_CountryBrief_eHStrategies.pdf; dostęp: 15.12.2012.

Canam C., Common adaptive tasks facing parents of children with chronic conditions, „J. Adv. Nurs.” 1993; 18: 46–53.

Cabizuca M., Marques-Portella C., Mendlovicz M.V., Coutinho E.S.F., Figueira I., Posttraumatic stress disorder in parents of children with chronic illnesses: A meta-analysis, „Health Psychol.” 2009; 28: 379–388.

van Dyck P.C., Kogan M.D., McPherson M.G., Weissman G.R., Newacheck P.W., Prevalence and characteristics of children with special health care needs, „Arch. Pediatr. Adolesc. Med.” 2004; 158: 884–890.

Mah J.K., Thannhauser J.E., McNeil D.A., Dewey D., Being the lifeline: The parent experience of caring for a child with neuromuscular disease on home mechanical ventilation, „Neuromusc. Disord.” 2008; 18: 983–988.

Ngui E.M., Flores G., Satisfaction with care and ease of using health care services among parents of children with special health care needs: the roles of race/ethnicity, insurance, language, and adequacy of family-centered care, „Pediatrics” 2006; 117: 1184–1196.

Liptak G.S., Orlando M., Yingling J.T., Theurer-Kaufman K.L., Malay D.P., Tompkins L.A., Flynn J.R., Satisfaction with primary health care received by families of children with developmental disabilities, „J. Pediatr. Health Care” 2006; 20: 245–252.

Ammentorp J., Mainz J., Sabroe S., Parents’ priorities and satisfaction with acute pediatric care, „Arch. Pediatr. Adolesc. Med.” 2005; 159: 127–131.

Hummelinck A., Podlock K., Parent’s information needs about the treatment of their chronically ill child: a qualitative study, „Patient Educ. Couns.” 2006; 62: 228–234.

Norman C.D., Skinner H.A., eHEALS: The eHealth Literacy Scale, „J. Med. Internet Res.” 2006; 8(4): e27.

Revision of the International Standard Classification of Education (ISCED), http://unesdoc.unesco.org/images/0021/002116/211619e.pdf; dostęp: 15.12.2012.

Berezowska J., Huet M., Kamińska M., Kwiatkowska M., Rozkrut D., Zych A., Społeczeństwo Informacyjne w Polsce. Wyniki badań statystycznych z lat 2007–2011, Główny Urząd Statystyczny Urząd Statystyczny w Szczecinie, Warszawa 2012, http://www.stat.gov.pl/cps/rde/xbcr/gus/PUBL_nts_spolecz_inform_w_polsce_2007–2011.pdf; dostęp: 16.12.2012.

Knapp C., Madden V., Marcu M., Wang H., Curtis C., Sloyer P., Shenkman E., Information seeking behaviors of parents whose children have life-threatening illnesses, „Pediatr. Blood Cancer” 2010; 56: 805–811.

Hohman K.H., Price S.N., Sonneville K., Rifas-Shiman S.L., Gortmaker Gillman M.W., Taveras E.M., Can the Internet be used to reach parents for family-based childhood obesity interventions? „Clin. Pediatr.” 2012; 51: 314–320.

Carroll A.E., Rivara F.P., Ebel B., Zimmerman F.J., Chistakis D.A., Household computer and Internet access: The digital divide in a pediatric clinic population, AMIA 2005 Symposium Proceedings: 111–115.

Staniszewski A., Bujnowska-Fedak M.M., Korzystanie z Internetu medycznego i usług zakresu e-zdrowia w opinii publicznej Polaków w 2007 roku, „Przew. Lek.” 2008; 1: 287–289.

Andreassen H.K., Bujnowska-Fedak M.M., Chronaki C.E., Dimitru R.C., Pudule I., Santana S., Voss H., Wynn R., European citizens’ use of E-health services: A study of seven countries, „BMC Public Health” 2007; 7: 53.

Statistical Office of the European Communities (EUROSTAT). Internet activities – Individuals. Last update 25.06.2012, http://epp.eurostat.ec.europa.eu/portal/page/portal/eurostat/home; dostęp: 15.12.2012.

Semere W., Karamanoukian H.L., Levitt M., Edwards T., Murero M., D’Ancona D., Donias H.W., Glick P.L., A pediatric surgery study: parent usage of the Internet for medical information, „J. Pediatr. Surg.” 2003; 38: 560–564.

Ikemba C.M., Kozinetz C.A., Feltes T.F., Fraser C.D., McKenzie E.D., Shah N., Mott A.R., Internet use in families with children requiring cardiac surgery for congenital heart disease, „Pediatrics” 2002; 109: 419–422.

Cohall A.T., Cohall R., Dye B., Dini S., Vaughan R.D., Parents of urban adolescents in Harlem, New York, and the Internet: A cross-sectional survey on preferred resources for health information, „J. Med. Internet Res.” 2004; 6(4): e43.

Wainstein B.K., Sterling-Levis K., Baker S.A., Taitz J., Brydon M., Use of the Internet by parents of paediatric patients, „J. Paediatr. Child Health” 2006; 42: 528–532.

Khoo K., Bolt P., Babl F.E., Jury S., Goldman R.D., Health information seeking by parents in the Internet age, „J. Paediatr. Child Health” 2008; 44: 419–423.

Fagnano M., Halterman J.S., Conn K.M., Shone L.P., Health literacy and sources of health information for caregivers of urban children with asthma, „Clin. Pediatr.” 2012; 51: 267–273.

Roche M.I., Skinner D., How parents search, interpret, and evaluate genetic information obtained from the Internet, „J. Genet. Counsel.” 2009; 18: 119–129.

Information

Information: Public Health and Governance, 2013, Volume 11, Issue 4, pp. 318 - 325

Article type: Original article

Titles:

Polish:

Ocena wykorzystania technologii informacyjnych wśród rodziców dzieci ze schorzeniami przewlekłymi

English:

Assessment of the use of information technologies among parents of children afflicted with chronic diseases

Authors

https://orcid.org/0000-0001-6963-8414

Mariusz Duplaga
Institute of Public Health, Faculty of Health Sciences, Jagiellonian University, Medical College, Kraków
https://orcid.org/0000-0001-6963-8414 Orcid
All publications →

Institute of Public Health, Faculty of Health Sciences, Jagiellonian University, Medical College, Kraków

University Children’s Hospital of Cracow, Jagiellonian University Medical College, ul. Wielicka 265, 30-663 Kraków, Poland

University Children’s Hospital of Cracow, Jagiellonian University Medical College, ul. Wielicka 265, 30-663 Kraków, Poland

Published at: 2014

Article status: Open

Licence: None

Percentage share of authors:

Mariusz Duplaga (Author) - 33%
Kinga Kowalska-Duplaga (Author) - 33%
Krzysztof Fyderek (Author) - 34%

Article corrections:

-

Publication languages:

Polish