Agnieszka Jaranowska
Niepełnosprawność, Nr 23 (2016), 2016, s. 224 - 237
Temporal analysis of experience and support received by the parents of children with autistic spectrum disorders
The research had two objectives. The first one was to enrich the knowledge of the temporal transformations in the experience of parents of children with autistic spectrum disorders. Second, gain knowledge of the subjective view of the effectiveness of the support system in the perspective of the parents (of children with ASD). From the research of temporal transformations in the experiences of parents of children with ASD that already during the period of diagnosis parents experience many negative experiences. However, their escalation occurs in the first year of diagnosis. What may be related to a final diagnosis.Onthe positive experiences of parents remained satisfaction from contact with the child and the belief in his recovery. In subsequent research periods with a relatively constant amount of negative experiences appeared more positive experience. The results of research on the support indicates that the most effective sources of information support for parents of children with ASD are: support groups, forums, associations and foundations. The respondents mentioned also assessed the emotional support received from informal sources of support, such as friends, family, support groups, associations and foundations. Financial support received from the state, family, friends and foundations was low and insufficient.