@article{d5022c60-b4b0-4749-bab5-9d59f7dd111e,
author = {Katarzyna Kruś},
title = {The situation of the family of a child born prematurely in the first months of his / her life – between the expected and received support},
journal = {Disability},
volume = {2018},
number = {Issue 31 (2018)},
year = {2018},
issn = {2080-9476},
pages = {58-71},keywords = {prematurity; family of premature baby; expected support; received support},
abstract = {The article addresses issues related to the care of a premature baby and his family in the first months of his life. Premature delivery is a difficult situation from a medical and emotional perspective, especially for a child’s family. Preterm born children constitute a group of special risk of disability. Often, the period of pregnancy and the first months of a child’s life are a time of uncertainty for tomorrow, fear for a child’s life and health, longing for maternal closeness limited by medical procedures. It is a time that requires comprehensive support for the child and family. The article focuses on the perspective of mothers, brings their opinions and experiences about the received and expected support during the first months of the child’s life. It is also an attempt to identify the needs of the family of a child born prematurely},
doi = {10.4467/25439561.NP.18.042.10442},
url = {https://ejournals.eu/en/journal/niepelnosprawnosc/article/sytuacja-rodziny-dziecka-urodzonego-przedwczesnie-w-pierwszych-miesiacach-jego-zycia-pomiedzy-wsparciem-oczekiwanym-a-otrzymanym}
}